Immunotherapy

[arbitro]

23 hours ago, DeeCee said:

Tumour is still shrinking, treatment going well, no side effects, happy days 🏆

Excellent news my friend.

[DeeCee]

Sat in Derriford hospital (Plymouth) having my 6th dose of Pembro and all appears to be going well although I've got an ultrasound in a couple of weeks as my last scan showed my bladder was somewhat enlarged but haven't got any symptoms of anything being wrong.

The care, communication and treatment I've had from this hospital is fantastic, the only downside (2/3 times) is my local surgery keeps managing to cock up my blood test dates/times/samples.

Less than 5 months to retirement, can't wait! 🏆

[Riversider28]

Very happy to hear your treatment is going well. Fingers crossed you will be able to enjoy a long and happy (Venkys permitting) retirement.   🤞

[Upside Down]

Good to hear that it's all going well. Hopefully this is successful. I get the impression that there's not many massive side effects to this?

[DeeCee]

None so far 🏆

[Nate]

Just stumbled on this. Glad to hear the treatment is going well. Last year my cousin was given six months, three tumours in the brain and numerous cancers in his back. Went through Immunotherapy and at the six month mark was given the news that the head tumours are inactive and the cancers in the back gone. Has regular PET scans though. 

[DeeCee]

I'm actually at Derriford hospital in Plymouth ATM waiting for another scan (5th in less than a year).  When I said no side effects, I've recently started itching and scratching myself till I bleed sometimes 🤦‍♂️

Got cream for it and also on steroids because of low cortisol levels but generally feel ok, not completely 100% but I'll take this tbh. 👍

[Riversider28]

Let’s hope the results of your scan are good news Dee Cee. Stay positive, we’re all thinking about you.

[Upside Down]

6 hours ago, Riversider28 said:

Let’s hope the results of your scan are good news Dee Cee. Stay positive, we’re all thinking about you.

I second this.

[Claytons Left Boot]

Hi DeeCee. Is the treatment still working and has the tumour continued to shrink? 

Thinking about you pal.
 

 

[Tyrone Shoelaces]

4 minutes ago, Claytons Left Boot said:

Hi DeeCee. Is the treatment still working and has the tumour continued to shrink? 

Thinking about you pal.
 

 

Me too.

[DeeCee]

Hi guys, thanks for the thoughts 👍 yes all going well, tumour has stabilised, may shrink more but will eventually re grow, then it's chemo etc.

Side effects now kicking in, itching like a flea bitten dog lol. Got cream that helps but if that's the worst thing, bring it on.

Walking football tomorrow, I rotate into the nets for 3/4 of the hour. 

Always positive 🙏

[wilsdenrover]

39 minutes ago, DeeCee said:

Hi guys, thanks for the thoughts 👍 yes all going well, tumour has stabilised, may shrink more but will eventually re grow, then it's chemo etc.

Side effects now kicking in, itching like a flea bitten dog lol. Got cream that helps but if that's the worst thing, bring it on.

Walking football tomorrow, I rotate into the nets for 3/4 of the hour. 

Always positive 🙏

Now you know how Waggott feels 😁

Your attitude is an inspiration.

[Upside Down]

I can't believe the only side effects are itching like a bastard.

Great news DeeCee. You reckon you'll get the all clear?

[DeeCee]

15 hours ago, Upside Down said:

I can't believe the only side effects are itching like a bastard.

Great news DeeCee. You reckon you'll get the all clear?

No mate, was told from day 1 it's terminal but I ain't ready to go yet 🤞🙏👍

Edited June 18 by DeeCee

[DeeCee]

On 17/06/2024 at 20:14, wilsdenrover said:

Now you know how Waggott feels 😁

Your attitude is an inspiration.

Thanks for the very kind words. 🏆

[DeeCee]

Had my periodical check up today, am responding very well to my treatment seemingly 🏆💪😁👍

[Upside Down]

Great stuff DeeCee

[Riversider28]

Excellent news DeeCee. Hope you’re allowed a drink or two to celebrate. Cheers 🍻 

[DeeCee]

On 03/08/2024 at 22:20, Riversider28 said:

Excellent news DeeCee. Hope you’re allowed a drink or two to celebrate. Cheers 🍻 

Oh yes 👍💪🏆🍺

[roverandout]

My mum's cancer was too far gone by the time we realised she had it. Otherwise we could have given her chemo. It was in her brain bones liver kidneys.  It's coming up to a year since she passed.  I'm glad u are doing ok DeeCee 

[DeeCee]

2 hours ago, roverandout said:

My mum's cancer was too far gone by the time we realised she had it. Otherwise we could have given her chemo. It was in her brain bones liver kidneys.  It's coming up to a year since she passed.  I'm glad u are doing ok DeeCee 

Thank you, I was diagnosed early but alas too late, I operate at 80% physically but full on mentally which is frustrating but - life is good. I'm at the hospital (70 mile round trip) every 2 weeks for either treatment, scans or consultants meeting. Care etc I get is 100% + 🏆

[DeeCee]

Had my last bout of treatment today, all good, took a bunch of flowers up for the staff. Got there early in case if accidents etc (70 mile round trip) in early and home for 15:00 🙏👍👏🏆

Merry Christmas and a happy and prosperous New Year to all. 🎅

 

[simongarnerisgod]

glad to see it`s working and you caught it in time,my brother in law is now on 6 month check ups and his tumour is currently dormant,did you experience some bad side effects?????it rendered my brother in law to real tiredness,he slept an awful lot

[DeeCee]

13 hours ago, simongarnerisgod said:

glad to see it`s working and you caught it in time,my brother in law is now on 6 month check ups and his tumour is currently dormant,did you experience some bad side effects?????it rendered my brother in law to real tiredness,he slept an awful lot

Tiredness, feel the cold more, itchy skin due to the treatment I'm having but otherwise no bad side effects.......

Hasn't been caught in time unfortunately, I've got another 10 months of this treatment and then it will be observe, scan every 3 months, then maybe chemo or radiotherapy when (and it will) the tumour starts growing again.

I'm stage 4 terminal on palliative care/ treatment but not feeling as ill as I was expecting tbh. 🤞

Edited December 19 by DeeCee